Go Mud Cats!!! Cheer on the Mud Cats Little League baseball team on Saturday, June 2, 2012 at 4 pm, Edgar Tillet Memorial Park, in Loudoun County, Virginia, when the team plays its annual “Friends and Family” game. This year’s game will focus on carcinoid cancer awareness and the coaches and team members have selected the Carcinoid Cancer Foundation as the charity for which they will raise money.
Travis Carver, coach of the Mud Cats team, is the creator of “Friends and Family.” This special game was inaugurated last year and included the singing of the National Anthem by a local student, hot dogs and popcorn, and raising money for charity. In 2011 “Friends and Family” raised money for the Rally Foundation, in support of research for childhood cancer. Atlanta Braves catcher and five-time All-Star Brian McCann, and his wife Ashley, are actively involved in raising awareness and helping to raise funds for the Rally Foundation. As fellow baseball players, The Mud Cats coaching staff and team wanted to support this very worthy cause and raised more than $1,500 for the Rally Foundation!
Mud Cats players and coaching staff gear up for the June 2 game! Pictured, left to right: Patrick Wyman (Assistant Coach), Callahan “Cal” Wyman (first baseman and catcher), Christian Carver (short stop and second baseman), and Travis Carver (Manager). Go Mud Cats!!
Carcinoid cancer has touched the lives of a family involved with the Mud Cats Little League team and this year they are dedicating their “Friends and Family” game to carcinoid cancer awareness, sharing information with all who attend the game and in the game program. The team will also be wearing carcinoid “zebra” bracelets, pins, and shoelaces!
Why the zebra for carcinoid and neuroendocrine cancer awareness? In medical school, students are told, “When you hear hoof beats, think horses, not zebras.” Physicians are taught to focus on the most likely possibilities when making a diagnosis, not the unusual ones. Sometimes physicians need to look for a zebra. In the rare disease community, the zebra can be carcinoid or a related neuroendocrine tumor (NET), such as a pancreatic NET.
If you would like to support the Mud Cat’s “Friends and Family” game and the Carcinoid Cancer Foundation, you can make donations by check or online with a Visa, MasterCard or American Express: http://www.carcinoid.org/content/contributing-our-foundation. When paying by check, please indicate Runs for Reach in the memo line and if paying by credit card, in the Donations section, choose In Honor of and type in Runs for Reach. Your support is deeply appreciated!
Our hats go off to the awesome Mud Cats team players, coaching staff, family and friends!!!
Sharing with you a little piece of history in this wonderful baseball video –Take Me Out to the Ball Game,” September 1908.
Why the zebra for carcinoid and neuroendocrine cancer awareness? In medical school, students are told, “When you hear hoof beats, think horses, not zebras.” Physicians are taught to focus on the most likely possibilities when making a diagnosis, not the unusual ones. Sometimes physicians need to look for a zebra. In the rare disease community, the zebra can be carcinoid or a related neuroendocrine tumor (NET), such as a pancreatic NET.
Below is a list of our latest zebra finds (a caveat: we have not purchased most of the items on this list so we cannot speak to the quality or the suppliers).
For the technology-minded crowd, there is a Portfolio Leather Case for the Apple iPad3. The case holds the iPad 3 securely in place, while still allowing the user to access all the buttons, ports, and screen . Velvet lining adds a soft touch and takes away any chance of scratching the back of the iPad3. The zebra stripes are made from felt and raised on top of a soft cloth canvas. Convert the front cover into a kickstand to watch movies or angle it to type comfortably.
Azebra-striped mouse pad is a must for desktop computer users. “ A great gift for geeks, gamers, or anyone with a computer. Rubber backing prevents the mouse pad from sliding. Machine washable.”
There are over 2,000 zebra print items on the zazzle.com website for the iPhone, iPad, and iPods. Blackberry users can find zebra-print cases on page 31. For those whose smartphone is the Android, choose from a rhinestone bling zebra cover or the traditional snap-on rubber case, among others.
While working at your desk, you have many choices for zebra-striped chairs – from a task chair with adjustable arms to a swivel chair. “The zebra-print fabric is about fun; the rest of this chair is all business. The thick padded seat and lumbar-support back are extremely comfortable, plus you can adjust the back and seat heights as well as the depth of the seat.”
Moving to attire, we begin with the one accessory that is a must in the NET community, a tie with zebra-stripes or pictures of zebras. A terrific gift for your favorite NET specialist! Choose from over 1,000 zebra ties at thezazzle.com website (clearly, “z” themed items are very popular on this site!). This website also gives you the opportunity to create one-of-a-kind ties for yourself or your loved ones. Upload your own images and patterns, or browse thousands of stylish designs to wear in the office or on the town. And when the occasion calls for a bow tie, there is the self-tied version or the clip on, available in traditional black and white to classy red and black.
Whether it’s Talbots, Nordstrom haute couture, or Walmart, there are zebra-print dresses, skirts, shoes, swimsuits and more for women.
At Talbots you will find zebra-print flats and heels, a belt, a chain strap bag, and a zebra print skirt.
At Nordtrom choose from zebra-striped Kate Spade shoes; Michael Kors dresses, skirts and a tunic; a Betesy Johnson watch; a Diane von Furstenberg scarf, and more.
Walmartoffers zebra-themed shoes, tote bags, rain boots, and many other choices.
For all seeking a zebra stuffed animal, the Zebra Jellycatat Amazon gets a five-star rating and is super soft! Amazon offers many other plush zebras. The Sweater Zebra, also soft and snuggly, is available at Pier 1 Imports.
And for all who yearn to zip around town or down the highway in a zebra-striped car, here is the FAW Bentung A 501. Back in 2008, First Automobile Works (FAW), China’s first auto manufacturer, was spied testing their new Bentung A 501. Has anyone seen it since? And Volvo made a customized zebra-striped car in 2009 but it was only available in Sweden!
If you can’t find the car, you might want to purchase a zebra-striped accessory listed in this “Ultimate Guide to Zebra Print Car Accessories.” There’s everything from seat covers to license plate frames to floor mats. Check it out!
Now we get to the extraordinary! For music lovers who play the piano, Baldwin has a custom-designed piano with zebra-stripes! This bold black and white piano features a red plate, nickel hardware, and red, white and black keys. Baldwin Custom House company has created the “Exotic Collection” with wild designs and customized paints.
Please share with us other resources or your great zebra finds! And check out our previous zebra blogs:
Denise Passehl, a carcinoid cancer survivor, will share her experience with social media when she participates in the 140 Characters Conference on April 23 in Des Moines, Iowa. The focus of the conference, designed by Jeff Pulver, is how “real time technology (Twitter, Facebook are two examples) is changing business, agriculture, media, education, sports, celebrity – everything.”
Denise Passehl will speak about "Social Media and Cancer: How the Technology of Now Helped Save My Life" during the 140 Character Conference in Des Moines, Iowa.
The day begins at 9 am in The Stoner Studio Theatre. Speakers present in segments of 10 to 20 minutes and their information is shared in a tweetable format. The speakers will talk about topics relative to Iowa lives. The conference provides an opportunity for the worldwide Twitter community to listen, connect, share, and engage. Use the hashtag #140confLOCAL to follow the conference on April 23. Read more about the conference here.
For Denise, social media offers an opportunity to connect with other patients living with carcinoid, a rare cancer of the neuroendocrine system. She will be talking about how her “experience on social media has helped me to live with carcinoid” and how she counts on her friends on the carcinoid social media groups “for support and comfort when others do not understand what I am really going through.” The title of her conference presentation is “Social Media and Cancer: How the Technology of Now Helped Save My Life.”
In her blog, Denise Thinks Green, Denise describes herself as an entrepreneur/owner of a home-based business, wife, mother of one son, grandmother of twins, dog lover, and nature lover. Her March 14, 2011 blog, Carcinoid Cancer: I Am Thankful for It, explains how the disease has brought her “so much closer to God.” Despite having a rare cancer, Denise finds much for which to be grateful, including family, friends, and her medical team.
“I am thankful because I have learned to enjoy life a lot more. I laugh, I play and I do what makes me happy. I love each day of my life, it is an adventure and I look forward to what God has in store for me every day. I see things in a different way, like a child sees things. I don’t take anything for granted anymore. Most of all I am thankful that I am alive. My heart is so full of gratitude. “
There are many social media resourcesfor carcinoid and neuroendocrine tumor (NET) survivors including a wide variety of Facebook pages, Twitter accounts, online support and discussion groups, and blogs. The following is a sample of social media resources focusing on these rare diseases:
Carcinoid and neuroendocrine cancer survivor stories and blogs, click here
Carcinoid Cancer Foundation on Facebook, click here
Get your running shoes ready for the 8th ANNUAL RUN FORHOPE on Saturday, August 4, 2012. The goal of the run is to raise awareness of carcinoid cancer, provide education, and give hope . . . while raising funds for carcinoid research and education and the Poudre Valley Cancer Center. Organized by the Lambert family, the run will be held in the City Park, Fort Collins, Colorado. Following the race and lunch, carcinoid/NET specialist Dr. Eugene Woltering from the Ochsner Medical Center–Kenner in Lousiana will be a guest speaker at the Medical Center of The Rockies in Loveland.
Get a team together and join the 2012 journey! There will be one-of-a-kind awards for all age bracket winners, prizes for top teams, a bagpiper, an awards ceremony following the race and much more. And for those who prefer a slower pace, walkers are welcome for the 5K run/walk.
Lexicon Pharmaceuticals, Inc. has been granted Orphan Drug Designation for telotristat etiprate (LX1032) by the U.S. Food and Drug Administration (FDA). LX1032 is used to treat carcinoid syndrome, a chronic condition caused by neuroendocrine tumors, characterized by severe diarrhea and flushing. One of the long-term consequences of carcinoid syndrome is carcinoid heart disease. For patients with carcinoid syndrome, the concentration of blood serotonin correlates with the severity of the symptoms of the syndrome — flushing, diarrhea, and wheezing – and with the potential damage to the heart. When carcinoid has metastasized to the liver, the tumors there may produce a high concentration of serotonin which flows directly into the right side of the heart. Telotristat etiprate is an orally-delivered serotonin synthesis inhibitor (SSI) drug that acts to reduce serotonin levels.
According to the FDA, the Orphan Drug designation program “provides orphan status to drugs and biologics which are defined as those intended for the safe and effective treatment, diagnosis or prevention of rare diseases/disorders that affect fewer than 200,000 people in the U.S., or that affect more than 200,000 persons but not are not expected to recover the costs of developing and marketing a treatment drug.” The program also provides various incentives and preferences, such as seven years’ marketing exclusivity from the date of approval and certain tax advantages.
Dr. Pablo Lapuerta, senior vice president of clinical development and chief medical officer at Lexicon, commented in a press release issued by Lexicon, “The Orphan Drug designation of telotristat etiprate by the FDA provides important benefits for this drug’s clinical development for carcinoid syndrome. We reported positive Phase 2 results in August 2011 in patients with carcinoid syndrome and are proceeding with preparations for a global Phase 3 development plan in this indication.”
Telotristat etiprate was discovered and developed at Lexicon to reduce serotonin production by inhibitingtryptophan hydroxylase (TPH), a key enzyme in the synthesis of serotonin. In clinical studies, LX1032 reduced bowel movement frequency in patients with carcinoid syndrome. Telotristat etiprate is one of a new class of oral drugs invented by Lexicon, the serotonin synthesis inhibitors, which are being developed for various gastrointestinal conditions.
The pathway for the synthesis of serotonin from tryptophan
Lexicon, a biopharmaceutical company founded in 1995, is dedicated to discovering and developing breakthrough treatments for human disease based on understanding how genes function.
Carcinoid and neuroendocrine cancer patients, family members, caregivers, and healthcare professionals are invited to attend the New England Carcinoid Connection Conferenceon Friday, June 8, 2012 at The Lantana in Randolph, Massachusetts. The day-long conference will feature presentations by Matthew Kulke, MD; Matthew P. Schenker, MD; and Thomas E. Clancy, MD; morning and afternoon concurrent workshops on topics ranging from nutrition and caregivers to alternative therapies and financial planning; a continental breakfast; and lunch. There is a per person registration fee of $25.00.
Dr. Matthew Kulke will discuss Carcinoid and Other Neuroendocrine Tumors: What’s New in Treatments and Clinical Trials. A carcinoid/NET cancer specialist, Dr. Kulke joined the staff of Dana-Farber Cancer Institute in 1997, where he heads the Carcinoid and Neuroendocrine Tumor program. He is also an Associate Professor of Medicine at Harvard Medical School and the Dana-Farber Cancer Institute in Boston, Massachusetts. He has received numerous awards for his clinical research and was recently named to the newly- formed Scientific Advisory Board ofNiiki Pharma, Inc. where he will provide clinical and strategic guidance to the company for its two first-in-class clinical stage anti-cancer compounds, NKP-1339 and NKP-2235. Dr. Kulke chairs the NCI NET Task Force and NCCN NET guidelines committees,and serves on the executive committee of the North American Neuroendocrine Tumor Society (NANETS). Dr. Kulke has chaired multiple global pivotal studies exploring new therapies for NET. In this video (click here to see the video) on NETClinical Trials, Dr. Kulke is joined by carcinoid/NET specialist Dr. James Yao of MD Anderson Cancer Center in Texas, nurse practitioner Robin Sommers from the Dana-Farber Cancer Institute and carcinoid patient and support group leader Kari Brendtro.
Dr. Matthew Schenker will talk about Interventional Radiology, Chemo, Bland and Radio Embolizations: Explanations for the Carcinoid Patient. Dr. Schenker practices in the Division of Angiography and Interventional Radiology at Brigham and Women’s Hospital in Boston. He is also an Instructor at Harvard Medical School. Dr. Schenker holds certifications in Diagnostic Radiology and Vascular and Interventional Radiology and is graduate of the University of Pennsylvania School of Medicine. He completed a residency in Diagnostic Radiology and fellowship in Interventional Radiology at Brigham and Women’s Hospital.
Dr. Thomas Clancy will speak about Carcinoid Related Surgeries. Dr. Clancy is the Associate Director of the Pancreatic Center, Division of Surgical Oncology, at the Brigham and Women’s Hospital. He is also the Medical Director, Multispecialty Surgical Oncology for the Dana-Farber/Brigham and Women’s Cancer Center, in clinical affiliation with South Shore Hospital in Weymouth, Massachusetts. Dr. Clancy is an Assistant Professor at the Harvard University School of Medicine. A graduate of Harvard Medical School, Dr. Clancy did his residency (surgery) and fellowship (surgical oncology) at Brigham and Women’s Hospital. He holds a certification in Surgery. Dr. Clancy’s clinical interests are surgical oncology, gastrointestinal surgery, hepatobiliary surgery, pancreatic surgery and general surgery.
Conference participants can choose from 4 concurrent workshops in the morning and 4 concurrent workshops in the afternoon.
Morning workshops:
Carcinoid and Carcinoid Syndrome: Its Effects and Diagnosis, Robin Sommers, Gastrointestinal Cancer Center, Dana-Farber Cancer Institute
The Importance of Nutrition to the Neuroendocrine Survivor, Stacy Kennedy, Nutritionist, Dana-Farber Cancer Institute
The Role of Spirituality in Coping, Larisa Waya, Chaplain for Dana-Farber Cancer Institute and Brigham and Women’s Hospital
Palliative Care for the Carcinoid Survivor, Speaker to be announced
Afternoon workshops:
Caregivers – Discussion lead by a 20-year carcinoid caregiver on duties, frustrations and help for yourself too, Dave Hawkins, New England Carcinoid Connection (NECC)
Alternative Therapies for the Carcinoid Patient, Speaker to be announced
The Role of Exercise in Fighting Cancer Related Fatigue, Laury J. Hale, Fitness Unlimited Health Club in East Milton, Massachusetts
Financial Planning for Chronic Illness, Jennifer O’Rourke, CPA
A special discounted rate for conference guests will be available at the Comfort Inn in Randolph, Massachusetts. Rooms will be available until May 8, 2012 at the rate of $99/night for Thursday night, June 7 only. Reservations can be made by calling the hotel at 781-961-1000, requesting the New England Carcinoid Connection discounted rate. The hotel offers a complimentary continental breakfast, free parking, an outdoor swimming pool, and fitness center. The Comfort Inn is in walking distance to The Lantana.
MEN, carcinoid, and neuroendocrine cancer patients, family members, caregivers, advocacy groups, physicians, and healthcare professionals are invited to attend the Multiple Endocrine Neoplasia Type 1 Seminar presented by American Multiple Endocrine Neoplasia Support (a division of the Hageman Foundation) in collaboration with the Mayo Clinic in Rochester, Minnesota. The seminar will be held on Friday, June 22, 2012 at the Mayo Clinic. The DoubleTree Hotel has set aside a block of rooms at a special rate for seminar guests staying at the hotel.
The program will both serve to educate patients, family members, and medical personnel and to provide an opportunity to meet others with MEN in a supportive environment. Topics to be explored are:
Genetics and MEN
MEN 1 Endocrinology updates on:
Pituitary
Pancreas
Parathyroid
MEN 1 specialty areas involving:
Surgery
Radiology
Pharmacy
Several Mayo Clinic specialty physicians that have an interest in MEN will be guest speakers and available to answer patients’ questions and concerns. The seminar will also feature multiple question and answer sessions.
Multiple endocrine neoplasia (MEN) syndromes received their name because they predispose people to develop tumors of the endocrine glands. The endocrine system is comprised of glands that secrete hormones into the bloodstream that control numerous processes within the body. The endocrine system is instrumental in regulating mood, growth and development, metabolism, as well as sexual function and reproductive processes.
The major glands of the endocrine system affected by the MEN syndromes are the pituitary, thyroid, parathyroids, adrenals and pancreas. Currently, there are two distinct MEN syndromes, MEN1 and MEN2. In some ways, the two syndromes are similar, but there are important differences.
MEN1 is an inherited disorder that causes tumors in the endocrine glands and the duodenum, the first part of the small intestine. MEN1 is sometimes called multiple endocrine adenomatosis or Wermer’s syndrome, after one of the first doctors to recognize it. MEN1 is rare, occurring in about one in 30,000 people. The disorder affects both sexes equally and shows no geographical, racial, or ethnic preferences.
The tumors associated with MEN1 are usually benign, meaning they are not cancerous. However, they can disrupt normal function by releasing hormones or by crowding nearby tissue. Eventually, about half of people with MEN1 will develop a cancerous pancreatic or carcinoid tumor.
Multiple endocrine neoplasia type 2 (MEN2) is characterized by a very high risk of developing medullary thyroid cancer (MTC). Individuals with MEN2 have a greater than 95% chance of developing MTC in their lifetime. MEN2 is divided into three clinical subtypes: MEN2A, MEN2B, and Familial Medullary Thyroid Carcinoma.
To read more about MEN, visit the Mayo Clinic’s website for information about Type 1 at http://www.mayoclinic.org/men1, about Type 2 at cancer.net, oncologist-approved cancer information from the American Society of Clinical Oncology, or the National Endocrine and Metabolic Diseases Information Service by clicking here http://endocrine.niddk.nih.gov.
In addition to the symposium presentations, there will be fun, socializing events and the opportunity to create an American Multiple Endocrine Neoplasia Support advocacy group to have a voice regarding MEN information and funding research.
Guests staying at the DoubleTree Hotel (a two-block walk to the Mayo Clinic) will have free shuttle service to area locations. There are also shuttle services to and from Minneapolis (Mall of America and Minneapolis Airport) and Rochester Airport for a fee.
For additional information about the Multiple Endocrine Neoplasia (MEN) Type 1 Seminar at the Mayo Clinic call American Multiple Endocrine Neoplasia Support, http://amensupport.org, at 865-238-5842 or toll-free at 866-612-8579. Be sure to also visit their website about the Whipple Procedure at www.mywhipple.org
Carcinoid and NET (neuroendocrine tumor) cancer patients, caregivers, and family members have a unique opportunity to learn more about NET cancer, including the latest information about diagnosis and treatments, and to network with hundreds of others who share similar concerns and experiences when the 2012 National Carcinoid and NET Patient Conference is held in New Orleans, Louisiana from September 20 to September 22, 2012. The conference will take place at theAstor Crowne Plaza, located at the gateway to the French Quarter where Canal Street meets Bourbon Street.
Nationally and internationally recognized NET cancer experts will speak on a wide variety of topics including the basics about NETs, innovations in NETs surgery, clinical trials in NETs – is there anything new, can the Gallium 68 scan save your life, diarrhea – is it tumor-related or a side effect of therapy, development and validation of NETs markers, diet and natural products in NETs, a summary of PRRT in Europe and America, what is EUS and when is it used, and what’s new in chemotherapy/biologic response modifier therapy of NETs. The conference will begin on Thursday afternoon, September 20 with a session on insurance, including information about appeals, how to interpret bills, and out-of-network benefits. During Friday and Saturday, in addition to the presentations, there will be two question and answer sessions each day. Lectures begin at 8:00 on September 21 and 22. For the complete program, CLICK HERE.
The registration fee is $100.00 per person; $125.00 per person after September 1. The registration fee includes attendance at the conference, a reception on Thursday evening, and both breakfast and lunch on Friday and Saturday. A special group rate for the Astor Crowne Plazais $149.00 per room per night until August 20, 2012, subject to availability.
Map of the French Quarter, New Orleans. Click on the map to learn more about all there is to see and do in the French Quarter!
Known as the “Big Easy,” New Orleans is also famous for its cuisine, music (particularly as the birthplace of jazz), and many attractions and festivals, including Mardi Gras. The French Quarter has something for everyone, from the beautiful architecture to art galleries, museums, and restaurants. Take a tour and learn more about the fascinating history of the area, or spend the entire day exploring and shopping in the area. There are many wonderful places to visit and things to do while in New Orleans. Watch this great New Orleans jazz video.
For more information, contact Maryann Wahmann, Carcinoid Cancer Awareness Network at 866-850-9555 or by email at 2012netconf@optonline.net.
Join us on Rare Disease Day, February 29th, for a Twitter chat about NET (neuroendocrine tumor) cancers with Steven K. Libutti, MD, Director of Montefiore Einstein Center for Cancer Carein New York. The chat will begin at 2 pm, Eastern Time.
Follow @MontefioreNews and use the hashtag #Monte_NETs. The Carcinoid Cancer Foundation, @CarcinoidNETs, and the Carcinoid Cancer Awareness Network, @Carcinoidaware, will be the moderators for the chat. This is a terrific opportunity to ask questions and participate in a discussion about carcinoid and neuroendocrine tumors.
Dr. Libutti is one of the pioneers of regional and targeted cancer therapy as well as an internationally recognized surgical oncologist and endocrine surgeon. Prior to joining the staff at Montefiore, Dr. Libutti was senior investigator and chief of the Tumor Angiogenesis Section at the National Cancer Institute (NCI) in Maryland. His research at NCI focused on the formation of new blood vessels, which nourish tumors, as well as the interaction among tumor cells, endothelial cells, and components of the tumor microenvironment that influence tumor growth and spread. Dr. Libutti’s clinical expertise is in the management of malignancies of the liver, pancreas, and GI tract, and in applying laparoscopic surgery to managing patients with malignancies. He also provides surgical consultation and treatment for patients with disorders of the thyroid, parathyroid, and adrenal glands.
The Carcinoid Cancer Foundation is proud to be a Rare Disease Day Partner.
Carcinoid cancer and neuroendocrine tumor specialists from around the world, fascinating presentations on all aspects of these rare diseases, the opportunity to meet fellow carcinoid and neuroendocrine tumor (NETs) patients and caregivers from near and far – these are all features of what makes a great carcinoid/NET conference. CNETS Canada is sponsoring its national conference from Friday, May 4, 2012 to Sunday, May 6, 2012 in Ottawa, the capital city of Canada.
“Closing the Gap between What Is and What Might Be for the NET Community” is a conference for medical professionals, patients, and caregivers featuring 30 sessions ranging from the ABCs of NETs for the newly diagnosed to surgical treatments to nutrition to what’s new in NETs research. Carcinoid and neuroendocrine tumor specialists from Canada, the United States, Ireland, Austria, and Sweden will be the guest speakers.
The landmark Fairmont Chateau Laurier, located next door to the Parliament Buildings, is the conference site. Special group rates for accommodations at the Chateau Laurier are as follows:
Fairmont Room (standard) for $189.00 per night plus tax
Fairmont with a view for $209.00 per night plus tax
Deluxe Room for $239.00 per night plus tax
For conference participants who wish to extend their stay prior to May 4th, the Chateau has a limited number of available rooms. CNETS Canada has contracted for group rates at nearby hotels. CLICK HERE for more information.
Chateau Laurier, Conference Center, photo courtesy City of Ottawa
Registration is $150.00 for patients and caregivers, $200.00 for Allied Medical Professionals, and $250.00 for MDs. The cost includes all conference materials and meals from breakfast on Friday until breakfast and mid-morning snacks on Sunday. A welcome reception on Thursday evening, May 3, will include finger foods. CLICK HERE TO REGISTER
The conference program will include plenary sessions and parallel sessions. For a complete conference program, CLICK HERE.
The Friday, May 4 program will include:
An Overview of NETs
Pathology of NETs: Closing the Gap between What Has Been and What Should Be in the Pathology Report
Circulating Markers and Prognostic Indicators for NETs
The Role of Imaging as a Biomarker for PRRT in Conjunction with Histology
ABCs of NETs for the Newly Diagnosed
Live Tumors and Octreotide
Introduction to Biomarkers
Lung NETs
When NETs become Liver “Mets”: Current Therapeutic Strategies
Surgical Treatment of Intestinal Neuroendocrine Tumors
Multivisceral Transplantation for Metastatic Neuroendocrine Tumors
mTOR Inhibition and Translation Control of Pancreatic Neuroendocrine Tumors
Managing Your Medical Records
The Saturday, May 5 program will include:
Clinical Trials: Their Importance and Relevance for Carcinoid/NET Patients
When Chemotherapy Is Effective
Nutrition for NET Patients
Management of Post Whipple and Post Bowel Resection GI Distress and Malabsorption
The HALCE/HACE Embolization
ABCs of Nuclear Medicine for Carcinoid/NET Patients
Communicating with Your Disease Site Team
Radioembolization and Spheres for Patients with Neuroendocrine Tumors
What’s New in NETs Research
Management of NET Symptoms and Subsequent Issues Arising from Different Treatment Paths
Neurocognitive Dysfunction – Part of the Carcinoid Syndrome or a Result of the Diagnosis?
The Sunday, May6 program will include:
Introduction to Centers of Excellence – Challenges Overcome and Challenges Ahead
Facilitated small group dialogue and deliberations across all stakeholder groups
To see a list of conference speakers and to read their bios, CLICK HERE.
Ottawa, the capital of Canada, is the second largest city in the Province of Ontario and the fourth largest city in the country. It is a multicultural, bilingual city with a diverse population. Whether you love museums, cycling, historic landmarks, night life, shopping, or sporting events, there is something for everyone in Ottawa. May is Tulip Celebration in Ottawa! Visit Ottawa’s tourism site and learn about all you can experience while attending the CNETS Canada conference.
Parliament Building and Changing of the Guard, photo courtesy City of Ottawa
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Carcinoid Cancer Foundation
Carcinoid Cancer Foundation
The premiere resource, nationally and internationally, for current and comprehensive carcinoid and neuroendocrine tumor information.
Why the zebra for carcinoid and neuroendocrine cancer awareness? In medical school, students are told, “When you hear hoof beats, think horses, not zebras.” Physicians are taught to focus on the most likely possibilities when making a diagnosis, not the unusual ones. Sometimes physicians need to look for a zebra. In the rare disease community, the zebra can be carcinoid or a related neuroendocrine tumor (NET), such as a pancreatic NET.
