The Big Apple Noids support group has initiated and is sponsoring, in collaboration with the Carcinoid Cancer Foundation, Luncheon with the Experts, a program which brings together carcinoid and neuroendocrine tumor (NET) patients with physicians to discuss issues ranging from NET cancer treatments and surgery to follow-up testing and new developments. These meetings, for a maximum of 24 participants per meeting, will be held in private dining areas of restaurants and other small settings in the greater metropolitan New York and tri-state area. While there is no charge for admission, interested individuals must register by email or telephone on a first-come, first-served basis. Participants pay for their own lunches.
The first luncheon will be held on Sunday, January 27 at 12:30 pm at Carinos Ristorante Italiano at 1710 2nd Avenue in New York City, New York. The luncheon will be in a private room. To see a menu and read more about the restaurant click here.
The experts for the inaugural luncheon will be Richard R.P. Warner, MD, Director of the Center for Carcinoid and Neuroendocrine Tumors at Mount Sinai Hospital in New York City and Medical Director of the Carcinoid Cancer Foundation, Celia M. Divino, MD, Chief of the Division of Surgery and Professor of Surgery at Mount Sinai Hospital and Lynn H. Ratner, MD, Assistant Clinical Professor of Medicine, Hematology and Medical Oncology at Mount Sinai Hospital.
Dr. Richard Warner, Director of the Center for Carcinoid and Neuroendocrine Tumors at Mount Sinai Hospital in New York City and Medical Director of The Carcinoid Cancer Foundation
Future luncheons, dates, times and locations to be announced, may include experts in the areas of oncology, surgery, interventional radiology, and nuclear medicine.
For further information and to register, please contact Emily Zuckerberg, support group leader for the Big Apple Noids, at ezuckerber@aol.com or 917-689-1980. Due to the small, personalized nature of the luncheons, only those who have registered will be able to attend. Patients may register for themselves and one guest. It is anticipated there will be a waiting list. Please register by January 20, 2013.
I was diagnosed with Carcinoid Cancer abut 2 years ago it has been a struggle to say the least. I’ve had 6ft. Of my small intestine removed and have numerous small tumors in my liver. I live in aa small town in Eastern Arizona and would like to talk with more people not only in Az but just anyone who is fighting this rare cancer. I am 53home years old and halve been married to the same great lady for 33 years. I have 4 children ranging in age from 31 to 19 years,I have 3 great Grandsons.
Michhael I was diagnosed in 2010 and know that you need to get involved with a support group of some kind. It is hard to deal with something so rare and not be able to talk or ask questions. I talk aften with someone in New Jersey and I live in North Carolina. Most doctors dont have a lot of information locally and you need to try and get to one of the conferences they offer to ask questions of experts that deal only with carcinoid. I hope this help in anyway.
So good to hear from Dorothy. I really do need to get out to meetings just so hard to travel sometimes due to symptoms of carcinoid cancer. I was involved in a clinical trial program for nearly a year it was a stage 1 trial at the Virgina Piper cancer institute in Scottsdale Az. We were trying a medicine called NKP 1337 but due to financial reasons it was stopped. I had a little success in thatthat it kept my.cancer stable. We continue to stay positive and praying for a cure. I just head my healthcare insurance stopped I’ve reached the limit of my Cobre extended care. Thank God I will finally be legible for Medicare March 1st. Im currently seeing a new onocoligst at the Mayo clinic in Scottsdale Az.