Tag Archives: NET cancer

2014 National NET Cancer Patient Conference — Registration Now Open

Carcinoid and NET (neuroendocrine tumor) cancer patients, caregivers and family members, as well as physicians and other health professionals, have a unique opportunity to learn more about NET cancer, including the latest information about diagnosis and treatments, and to network … Continue reading

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Mobile Survey for Carcinoid Syndrome Community

Carcinoid syndrome patients, caregivers, and advocates in the carcinoid syndrome community are invited to participate in an exclusive mobile survey being conducted by WEGO Health via Truvio. WEGO Health is an organization committed to empowering Health Activists in the online … Continue reading

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Remembering Dr. Martin Luther King and Sharing the Carcinoid Cancer Foundation’s Dream

Fifty years ago today, August 28, 1963, the Rev. Dr. Martin Luther King gave his historic speech, “I Have a Dream.”  That enormously powerful speech, http://youtu.be/smEqnnklfYs, still resonates with people decades later. As we listened to Dr. King’s speech we … Continue reading

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Neuroendocrine Tumors Featured in Society of Nuclear Medicine and Molecular Imaging Patient Program

Josh Mailman, President of the NorCal CarciNET support group and Chair of the Patient Advocate Advisory Board for the Society of Nuclear Medicine and Molecular Imaging (SNMMI), will give the Welcome presentation for the SNMMI Patient Education Day on June … Continue reading

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New OncLive TV Series Focuses on Neuroendocrine Tumors

Carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors and even more uncommon NETs such as goblet cell carcinoid and mixed adenocarcinomas, are discussed by a panel of medical experts in this new video series from OncLive TV. The panel … Continue reading

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Happy New Year from the Carcinoid Cancer Foundation

As 2012 draws to a close, the Carcinoid Cancer Foundation would like to thank each of you for your support.  This year has been especially exciting because of our work on the Worldwide NET Cancer Awareness Day Alliance, with Grace … Continue reading

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“Sunny Susan” Anderson Wins 2012 Warner Advocacy Award

When “Sunny Susan” Anderson began her search on the Internet in 1995 for information about carcinoid cancer little did she realize that she would later create the first carcinoid patient website and become an extraordinary advocate for others seeking information … Continue reading

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Neuroendocrine Tumor Webinar Just Opened to Patients and the Public

Just opened to the patient community and the public, with limited space available, is a free live webinar featuring carcinoid and NET cancer specialist Dr. Eric Liu, Director of the Neuroendocrine Center at Vanderbilt University Medical Center in Nashville, Tennessee.  … Continue reading

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Lexicon Pharmaceuticals Granted Orphan Drug Designation by FDA for Carcinoid Syndrome Treatment

Lexicon Pharmaceuticals, Inc. has been granted Orphan Drug Designation for telotristat etiprate (LX1032) by the U.S. Food and Drug Administration (FDA).  LX1032 is used to treat carcinoid syndrome, a chronic condition caused by neuroendocrine tumors, characterized by severe diarrhea and … Continue reading

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Twitter Chat on Rare Disease Day to Focus on Carcinoid and NET Cancers

Join us on Rare Disease Day, February 29th, for a Twitter chat about NET (neuroendocrine tumor) cancers with Steven K. Libutti, MD, Director of Montefiore Einstein Center for Cancer Carein New York. The chat will begin at 2 pm, Eastern … Continue reading

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