10 Resources for Carcinoid Cancer Patients

For carcinoid cancer patients who are feeling too ill to cook, shop or clean; for those who have experienced hair loss due to chemotherapy; or need lodging when traveling to cancer treatments there are some wonderful resources available.

Cleaning for a Reason Foundation says “Fighting cancer is difficult enough, but living with it is even tougher,” and that’s where they step in.  This nonprofit offers free professional housecleaning services to improve the lives of women undergoing treatment for cancer – any type of cancer. There are 808 Cleaning for a Reason partners in 50 states and Canada.  Visit their website, http://www.cleaningforareason.org, to find out more about how to apply and the locations of the cleaning services.

Cleaning for a Reason

Angie’s Spa is a nonprofit organization that provides spa services to men and women undergoing chemotherapy.  The three hospital programs that are currently funded are Northridge Hospital Medical Center in California, Hartford Hospital in Connecticut and Southampton Hospital in New York. “These therapeutic massages are designed to alleviate painful side effects, provide relaxation to enhance traditional treatments, and give cancer patients a self-esteem boost.”  To read more about this service, visit http://www.angiesspa.org.

 

God's Love We DeliverIf you live in one of the 5 boroughs of New York City, Newark and Hudson County in New Jersey, God’s Love We Deliver has a special Cancer Program that provides free meals to people who are living with various stages of cancer and are currently receiving treatment. How can you get on the meal program? Call client services at 212-294-8102 or 800-747-2023 to begin the registration process. For more information: http://www.godslovewedeliver.org.

There are a number of places throughout the country that offer free wigs for cancer patients, including Cancer Care, American Cancer Society, the Duke Comprehensive Cancer Center, and the University of Michigan’s Comprehensive Cancer Center Wig Bank Program.

Cancer Care has a special page devoted to carcinoid tumors, CLICK HERE.  Here you can find education workshops, podcasts, literature such as “Coping with Cancer:  Tools to Help You Live,” “Helping Children When a Family Member Has Cancer,” and tips for communicating with your health care team (in both English and Spanish), as well as financial assistance information.  Cancer Care provides limited aid to eligible families for cancer-related costs such as transportation and child care.

Carcinoid cancer patients and their families can find help and hope if they have to travel far from home for treatments.  Each American Cancer Society Hope Lodge “offers cancer patients and their families a free, temporary place to stay when their best hope for effective treatment may be in another city. Not having to worry about where to stay or how to pay for lodging allows Hope Lodge guests to focus on the most important thing: getting well.”

And a Hope Lodge also provides “a nurturing, home-like environment where patients and caregivers can retreat to private rooms or connect with others who are going through many of the same experiences.”  To read more about the program and see a complete list of Hope Lodges throughout the United States, CLICK HERE.

The website Cancer Fairy Godmother has links to a wide variety of resources for cancer patients including information about financial assistance as well as assistance with medications for uninsured patients, resources for care at home, and more: http://cancerfairygodmother.com.

The National Cancer Institute has an extensive list of Resources for Financial Assistance for Patients and Their Families: https://cissecure.nci.nih.gov/factsheet/FactSheetSearch8_3.aspx.  Search resources by topics such as Health Insurance/Co-Payments, Lodging (during treatment), Illness/Disability Compensation, Medications, and Practical Needs (mortgage, rent, food, transportation).

You can also read our earlier blogs Take Them a Meal: How to Help a Carcinoid Patient and Grocery Shopping Tips & Comfort Food for Carcinoid Cancer and Neuroendocrine Tumor Patients for information about grocery shopping services and how friends and family can plan meals for carcinoid patients.

Take Them a Meal for cancer patients


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5 Responses to 10 Resources for Carcinoid Cancer Patients

  1. florine lipsay says:

    Thank you for all of the resources.

  2. NANCY JEFCOAT says:

    I AM GETTING CLOSER EACH DAY FOR ASKING FOR SOME HELP. MY DAD PASSED AWAY 2/16/2011. I ASKED THAT FOOD NOT BE BROUGHT TO MY HOME BECAUSE I HAD NOT CLEANED MY HOME. I AM SO EMBARRASSED FOR ANYONE TO SEE MY HOME OR ME. NANCY JEFCOAT

  3. Hi Nancy, We are so sorry to learn about your dad’s passing. Please accept condolences from all of us at The Carcinoid Cancer Foundation. This is a very difficult time for you and asking for help may make it a bit easier for you. You are in our thoughts and prayers. With sympathy from The CCF Team

  4. NANCY JEFCOAT says:

    THANKYOU! MY SON, RUSSELL, DIED IN OCT. HE BECAME JUVENILE IDDM AGE 5, HAD SARCOIDOSIS AGE 16, MARRIED AT AGE 20. HIS SON, RYAN WAS 15 MONTHS OLD WHEN MY SON BROKE HIS NECK. HE ASKED THE LORD FOR THE PRIVALEGE OF SEEING HIS SON GROW UP. EVEN BEING A QUAD, HE TAUGHT HIS SON GARDENING, CARPENTERING, MACHINICING AND MOST IMPORTANTLY, HE TAUGHT HIM ABOUT JESUS. ANGIE, HIS WIFE AND RYAN WERE BY HIS SIDE DAILY UNTIL HE DIED. I ASKED THE ICU DOCS TO CHECK HIM FOR CARCINOID, BUT THEY CHOOSE NOT TO. EVEN IF I, MY SON, OR DAUGHTER, LONA, WHO HAS BEEN TYPE 1 IDDM SINCE AGE 2 CANNOT BE HELPED, I AM WILLING TO BE USED IF NECESSARY TO RESEARCH AN ENDOCRIN-LINK TO ENDOCRIN DISORDERS. THE CARCINOID SYNDROME SX ARE BECOMING UNBEARABLE, BUT A TUMOR HAS NOT BEEN LOCATED. HAS ANYONE HEARD FROM MR. TOM. HE HAD NEGATIVE REPORT IN SEARCH OF TUMOR IN HIS EXPLORATORY SURGERY LAST WEEK. HE WAS SO HOPING, AS I DO, TO GET SOME RELEIF. PLEASE REMEMBER HIM.

  5. NANCY JEFCOAT says:

    FORGOT TO SAY THAT MY SON LIVED 18 YEARS. RYAN WAS 19 LAST YEAR. IF THERE IS A GENETIC LINK IN OUR ENDOCRIN DISORDERS, IT NEEDS TO BE RECOGNIZED BEFORE MY GRANDSON DEVELOPS ENDOCRIN ABNORMALITIES. I READ UP ON ZEBRAS. NOT ONLY DO THEY SOUND LIKE HORSES, BUT THEIR STRIPES ARE AS A PERSONS FINGER PRINT. THE SX ARE HORRIBLE TO THOSE OF US THAT EXPERIENCE THEM, BUT TO ID THEM CAN BE NEAR-IMPOSSIBLE. PLEASE EXCUSE TYPING, MY GRAMMER AND VISION COULD STAND MUCH IMPROVEMENT.

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